Young People & Families
Upfront Genome Sequencing
What is genomic sequencing?
Most often genome sequencing is offered as part of a research project or trial when standard treatment protocols haven’t been effective. Our approach is to offer genomic sequencing upfront – around the time of diagnosis.
To find out more about genome sequencing watch our video here
How much will it cost to have my genome sequenced with Australian Families 4 Genomics?
Genome sequencing is currently free to young people with cancer aged between 15 and 25 years old treated at the Princess Alexandra Hospital, Brisbane if they are not eligible for genome sequencing through a research project or trial.
How does Australian Families 4 Genomics fund genome sequencing?
We rely on fundraising or donations, however we encourage those who can pay, to pay it forward and support another young person with cancer to have their genome sequenced.
The opportunity to accelerate research and help others
You will be invited to donate your genomic and heath information to the Australian Omics Library
The Australian Omics Library is a large database which securely shares your data with clinicians and researchers working to improve outcomes for young people with cancer.
Watch our video to find out more here
Why donate to the Australian Omics Library?
The Australian Omics Library will enable amazing things to be done with your information. It can help with finding faster and more accurate diagnoses, opportunities to take part in clinical trials, developing new cancer treatments, and discovering causes of cancer that we don’t know about yet.
How can the Australian Omics Library benefit everyone?
Being part of the Library will make it easy for more health professionals and researchers to access your information so that it can be used more widely for research than a single project or trial.
Importantly, the Library will continue gathering your information into the future and make it easy for you to access it whenever you need it.
When can I access the Australian Omics Library?
The Australian Omics Library is a single point of contact for you to access your genomic and health data should you need it now or in the future.
Who has access to the data?
Researchers from around the world may access your data if they apply and are approved by the Australian Omics Library. They may work for not-for-profit organisations such as charities, universities or hospitals and for profit commercial companies such as drug or technology companies.
In some instances your data might help another medical practitioner find a treatment for one of their cancer patients. If you agree, a medical practitioner can request access to your de-identified data for this purpose.
Can a person’s data be identified in the Australian Omics Library?
No, all the data will be de-identified. No one can access personal information such as name, address, date of birth except the person who owns the data.
Email email@example.com to find out how you can sign up.
Equipped 4 Life
Equipped 4 Life aims to provide support, encouragement and guidance to young people impacted by cancer by connecting them with youth mentors and professional life coaches.
A listening ear, when it’s needed, to help navigate life as it happens.
We are currently seeking volunteers to help us make Equipped 4 life a reality. Please email firstname.lastname@example.org to find out more.