A legacy of a determined young woman
Just before Madeline turned ten, the young artist and her loving family discovered she was suffering from brain cancer. Madeline loved art, music, school, travel and talking to new and old friends. She was courageous and determined to do everything normal kids do; such as climbing high ropes, performing, music and being a wildlife warrior.
Following spinal and brain radiation and endless rounds of chemotherapy Madeline relapsed prompting her family to search for another possible treatment. Genomic sequencing allowed Madeline to enroll in a clinical trial in the USA to extend her precious life. Sadly Madeline passed away just after her fourteenth birthday.
Tragically, not every child and young person with cancer can access genomics. Madeline's Wish and our wish is for all children and young people with cancer to have genomic sequencing when they are diagnosed.
Madelines’s Model allows children and young people to consent to genomic sequencing and donate their information to the Australian Omics Library.